Baclofen Pump

August 14, 2008

I was recently on an ms forum discussing the baclofen pump. One woman I met there was from Canada.  She needs the baclofen, on high dose of oral baclofen with increasing spasticity, pain-you know the routine by now.

Well, being in Canada with universal healthcare she has to wait about 18 months.  Yes, I did say 18 MONTHS.  I know the healthcare system in our country is less than perfect as well.  But when you are dealing with a progressive disease like ms 18 months is a lifetime.  

I decided to take my doctors advice regarding the baclofen pump in mid-May of this year.  Three weeks later I saw the neurosurgeon for a consult. Three weeks later I had my test dose.  Four weeks later I underwent the surgery.

Simple math results in 10 weeks I waited from the time I made the decision to get a baclofen pump until I underwent the surgery.  Two and a half months.  Plus I had a choice of doctors.  That choice included the three or four neurologists I sought opinions and help from in just the initial diagnosis of this disease.

So I guess this time around, with the election around the corner, I am soapboxing a bit.  I like the idea of healthcare for everyone but not the practicality of universal healthcare.

I would not like waiting 18 months for the pump.  Between the lack of movement and pain it would be a real test of my mental fortitude.  Of course, some would say it is an excellent opportunity to test and tweak your mental fortitude, faith, etc.  

I think we need to really understand Universal Healthcare before we begin voting.  It may affect all of us in ways we never imagined.  Sometimes good ideas turn out bad results.

2 Responses to “Baclofen Pump”

  1. atypicalms's avatar atypicalms Says:

    I am not basing my vote on proposed system which is not even on the table. What I am doing is really looking into the Universal Healthcare that is being proposed and weighing whether or not it will be enacted in that very manner. I am and hope everyone is really analyzing what system is being proposed. Basically, become more informed, research for ourselves and not just take what politicians are saying at face value. Also to take into account of what may happen. Sometimes we open a door with the best of intentions and those we have no control over do what is best for themselves. BE CAUTIOUS, is all I am really saying. BE CAUTIOUS. Politicians do what is best for themselves.

    We live in a capitalist society. Competition breeds choices for all.

  2. Lisa Emrich's avatar Lisa Emrich Says:

    Neither of the presumed candidates are proposing a Universal Healthcare System such as those in Canada, Great Britain, or France. What is being discussed are two varying methods of addressing healthcare financing through the existing Health Insurance System.

    I sincerely hope that you are not basing your vote on a fear of a proposed system which is not even on the table for discussion. From where I am in the individual health insurance market, it looks pretty bleak for MS patients. I want to caution anyone from thinking that the increased use of the Individual Insurance Market will provide better protections and more affordability.

    Please examine the consequences of the actual presidential candidates’ platforms, not fear-mongering.


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