MS Improves With Rituxan

September 13, 2013

Almost four months have passed since completing my first cycle of Rituxan. Admittedly, I was apprehensive about trying a new treatment option. My doctors started treatment using the least problematic option, so every change means potentially more worries and less future choices. After all, progressive multiple sclerosis is the giant white elephant in the room- ain’t nobody looking it’s way. Every other week it seems relapsing remitting ms has a new treatment option while progressive ms plods along with bad to worse treatments. Oh, I guess I should just be happy there are treatments. And I am!

So, onto the treatment du jour-Rituxan. Yes, its doing its job. Overall, my symptoms have lessened, I’ve grown stronger, and I remain stable. That’s a good thing. I cannot say that each day or week I continue to see improvement, but my life is noticeably better. I can walk further distance wise, and have more stamina, endurance. If you have read any of my blog concerning my early days of with this disease, then only remaining stable would be a huge deal. But to feel stronger, to have symptoms lessen, to have improved quality of life is truly a blessing.

Now onto the good part. Yes, I said the good part as if improved quality of life isn’t good enough. Recently, I learned that it can take several cycles of Rituxan before garnering it’s delicious full effect. Needless to say I welcome my next cycle of Rituxan. The lack of side effects is also a welcome change from cytoxan and cellcept. Granted the possibility of PML if JC Virus positive is a bit bigger of an issue than say nausea, but PML has not occurred in any MS patient receiving Rituxan as a disease modifying treatment. We all need a good justification every day-that’s mine.

Good and Bad

February 2, 2011

So I have been feeling pretty good lately.  I’m not running any races, well I’m not running.  I have enough daily energy to do what needs to get done.  Essentially, I operate on a low level.  That  is good.  I am happy with that.  I can make a little life for myself.

The bad. Well, I’ve never been satisfied with slowing down or following rules.  Most of the time this rebellious spirit serves me well.  But, when it comes to conserving my energy and keeping my energy at a good level the rebel in me is not serving me well.

Rebellious Spirit, Spirit of the Soul, does help with overcoming the depression, the “woe is me” feeling that a chronic illness brings. The spirit enables you to live happily, find a way to make your life, see the joy in life despite or maybe even because of your troubles.

When this disease, when atypical ms progresses again I will be facing another round of chemo, cytoxan.  If you have read any this blog you know that I have a love hate relationship with cytoxan.  Chemo really helped me, but I was sick; sick through the process.  I want to keep myself as good, as healthy as I can.

The rebel me needs to ssllooww down if that is going to happen.  In analyzing why I don’t slow down, I’ve come up the answer.  I think.  I want to live life, experience all life has to offer.  I don’t want to follow the speed limit and park between the lines when I die.  I want drive 100 mph taking the backroads finally careening into a skid as I stop at the Pearly Gates jumping out of my convertible  tossing St. Peter my keys.  You get the idea.

The spirit is willing but the body isn’t able.  So I hope my spirit finds creative ways to live life without punishing my atypical ms ridden body.

We’ll see how it goes.