Atypical Multiple Sclerosis

Currently, I am migrating from Cytoxan-chemo-to CellCept. Yes, cellcept is usually used for transplant patients, but it is an immunosuppressant; therefore, helpful in multiple sclerosis. I am taking cellcept as maintenance therapy following my course of chemo.

Usually you start at 250mg (one pill) and after months, yes months this is not an exaggeration, you end at 2000mg. This means eight, EIGHT,8 pills a day. Of course, that is in addition to the multitude of other symptom meds you already take.  

But it works. Yep, thats right it works. For how long, I don’t know but I’ll take it. And I’m happy to have something that works. Even though it means even more blood work. After all the Cytoxan infusions, mere blood work is a joy to undergo.

I am only on the first pill. I increased to two pills a day, but my white blood cells plummeted so I had to drop back to one pill a day. Looks like this could take awhile.  

Having ms, atypical ms, primary progress ms is like waltzing or a good polish polka.  You take a few steps forward, spin, a few backwards but never end up where you begin.  If it is done right it is fun.  Not that ms is fun, but life is really what you make it.  There are no guarantees.  You happiness is all about being in the moment, moment by moment.  With that in mind, no matter where you are, or what you are going through, life can be good.